As many of you know I'm going through the fight of my life right now and I have been sharing my journey along the way, you can refer to these posts to get caught up (in order of most recent post about my experience to oldest):
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Prayers and Good Vibes Needed
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Today's HA! HA! Moment!
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Happy New Year Butterfly!
While in the hospital amazing online groups I belong to have rallied around me to help make this difficult time much more bearable. In many ways my online friends have rallied for me harder and faster than some of my real life ones! A beautiful flower arrangement (done inside a tea cup) and a balloon appeared at the hospital from:
I was so surprised and they defintely lifted my spirits, including the messages of support from the group too! And a visit from one of the members of the groups where we got to meet IRL (in real life) for the first time was such a wonderful surprise!
And another amazing surprise was that the Latina Bloggers Connect crew created a chip in account to help with my Medical Expenses, donations have started to come in, and honestly it all brought tears to my eyes. I'm usually the person who gives, and at first was a bit uncomfortable with the idea. But I realized that this isn't a time to worry about pride, but to worry about my health. This gift allows me to focus on my health and not worry so much about bills. It's not just the donations that have come in, but many being from perfect strangers with messages of support and encouragement that have really touched me.
My articles about my harrowing experience at the hands of a hospital have had an amazing trickle effect even I didn't think about, be it from reading my article, or donating to my chipin, people have shared THEIR stories with ME. Horrible medical experiences, their own medical challenges, or those of someone they love, and all the stories have been so moving!
So I also want to thank the amazing folks behind:
For setting up the following Chip In Fund (you can press on the button below if you'd like to also contribute and you will also notice the button on my sidebar as well):
And a special thanks to each and every one of you who have contributed so far!
Now me being the cheeky person I am and having the wicked sense of humor that I do, I have to share I have lost more weight since all this craziness began. The almost two weeks under heavy meds made food pretty un-appetizing and now clothes and even underwear are very loose on me, not the way I had in mind to loose more weight this year! But I guess I have found one positive in all this negative. Last year I slowly lost almost 26 pounds. And this year with this medical struggle I'm losing even more weight. So unlike most, I've kept the holiday pounds at bay! But not in a way I'd recommend of course.
I'm temporarily back home, and enjoying escaping that crazy hospital and my crazy hospital roomie. I can sleep in total darkness and silence again! Well, at least until I have to go back to the new hospital I am changing my care to. I can eat 'real' meals again, and get some air/sun and of course take real showers in a bathroom with a working shower. Even a long bathe. Something we think of as commonplace and even take for granted until we can't have them.....
Have a friend in the hospital? Here are some do's and don'ts:
DO - Visit them. Hours are insanely slow when your life screeches to a halt.
DON'T - Give them the 'poor baby' look. I'm not saying lie and tell them that they look fab, they don't need or want that either, but the 'poor baby' look makes people want to scream.
DON'T - Over tax the patient, don't bring them stress, theirs or yours.
DO - Leave after a reasonable amount of time. The person may feel like they have to keep up energy they really don't have to make YOU feel comfortable.
DON'T - Arrive empty handed. BUT:
DO - A little recon, find out if they can have flowers (not all units allow the patients to have them in their rooms. My unit did NOT allow flowers in the patient's room which I was super bummed about.) Things most patients will always need: PJ's, toiletries (invariably you will forget something that they don't have), lotions (your skin ends up feeling like sandpaper in there), treats (waiting on the food tray to arrive is nerve wracking, many times you don't get what you want, it tastes awful and you end up hungry way before the next tray is set to arrive). So once you find out what they can have and can't have, be sure to bring treats or food, it will be greatly appreciated.
DO - Ask about the patient's care with the patient and the team, patients who are being looked after get better care. period. Make sure enough people are visiting that patient so the hospital staff knows you will notice anything out of place or any negative treatment or problems.
DO - Keep in mind the patient's schedule is no longer their own, they often have to take tests so may not be in their room, and when they just get back to the room be it after surgery or after testing, they are exhausted. If they fall asleep, LET them sleep and come back to visit at another time.
Right now it takes so much extra time to do things I normally never had to think about, but I'm actively working at keeping my spirits up and remaining inspired.
If I can keep my spirits up despite my current challenges, so can YOU!
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FTC Disclosure: This is NOT a sponsored Post. I am choosing to thank the online groups that sent cheer my way during a very difficult hospital stay. I was under no obligation to do so and all opinions expressed here are 100% my own.
Hope Everything works out for you in the long run - Hang In There. There is a reason and an end result in everything that happens.
ReplyDeleteI hope your stay in the hospital gets better.
There are doctors and nurses that have more compassion elsewhere. New York doctors and nurses are way too stressed out.
Thank you.
Delete♥ Ƹ̵̡Ӝ̵̨̄Ʒ
It is amazing how these groups are able to pull together to help you out. It has to feel amazing to have such a great support system surrounding you. <3
ReplyDeleteThanks Amber, everyone in the hospital needs a support system that's for sure, look what happened to me even though I did have one!
Delete♥ Ƹ̵̡Ӝ̵̨̄Ʒ
Awesome support. I will definitely keep you in my prayers.
ReplyDeleteThank You.
Delete♥ Ƹ̵̡Ӝ̵̨̄Ʒ
♥ Ƹ̵̡Ӝ̵̨̄Ʒ
ReplyDelete